The Disability Bioethics Reader
is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.
Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as:
state-of-the-field analyses of modern medicine, bioethics, and disability theory
health, disease, and the philosophy of medicine
issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states
enhancement and biomedical technology
invisible disabilities, chronic pain, and chronic illness
implicit bias and epistemic injustice in health care
disability, quality of life, and well-being
race, disability, and healthcare justice
connections between disability theory and aging, trans, and fat studies
prenatal testing, abortion, and reproductive justice.
The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.